About me

I’m not really a special parent!  I’m just a parent who happens to have had two children with very high special needs (my full story is told in the disability page).  Because this is a huge part of who I am, and of how I see and experience the world, “special parent” seemed an appropriate title. 

Other general info: I am married, and have had three children, the eldest of whom died in 2005.  My second child is 13 and my youngest is 18 months old.  I have been on maternity leave and am just beginning to do a little bit of part-time work to help with cash flow!!

But why have a blog?  Good question!!  (I wondered the same thing at first.)  I’m not an “out there” public type of person.  In fact I am naturally reserved, private and shy. 

Firstly (and perhaps selfishly!) I am doing it for me.  I don’t know about you, but I’m my own worst critic, and felt it would be good for me to keep a record of my achievements, disappointments, thoughts, and experiences.  Sort of like a compulsory journal to be looked back on.  I am hoping it will help me to be a little more disciplined in life – to follow dreams and plans.  Sort of like an accountability partner.  If I post something “out there”, maybe I will be more likely to put self-doubt or procrastination aside and instead follow determinedly through.  Well… we’ll see!!!

Secondly (and probably more importantly) I am doing it for others.  Maybe other parents of children with special needs; maybe other parents who have had disappointments and heartache.  Maybe for  people who are curious or interested in how you go about living life when life dishes out some pretty terrible circumstances.  Hopefully what I write may give encouragement and hope.  Hopefully what I write will be “real” – not an attempt to gloss over the tough stuff.  Hopefully others who read this who are going or have gone through some tough things in life will feel a connection.  I don’t intend to represent all parents who have had children with special needs!!  This is simply my take on things, how I cope, what I think.

Responses

  1. I think those are two VERY valid reasons for blogging – so glad you’ve come around to the idea ;)

    ps: hope this doesn’t mean I have been fired as an AP?!?

  2. No… you haven’t been fired. I definitely still need an AP – you know how slack I am!!!

  3. Rach has just steered me to your blog.
    I often think of you and the rest of the H family.
    I agree with M above…excellent reasons.
    Love and prayers
    Karen
    x

  4. Hi Joanne, I have found my way to your blog via Rach. Wow, what a richness is found in your words. You have SO much to offer others and yes, the other reason is an excellent one, too. Thanks for sharing and I look forward to reading more insights. Love Rosemary E.

  5. Thanks Rosemary and Karen. You are both very encouraging! I’m keen to share things honestly as I see them and I’m keen to be an encouragement to others. So, I’d better keep doing this “blogging” thing!!!!

  6. Hey Joanne! Wow time does fly, it seems only a short while ago that we sat in your living room for Bible Study. Was very excited to see your blog and to read your thoughts. Good on ya for sharing your journey, you have a wealth of “LIFE” experiences that can inspire us all. Much Love, Da Setiuz

  7. That was AGES ago. Nice to hear from you…

  8. Hello my dear Joanne!
    I am so happy to have “found” you and C again! We got your Christmas card today and I have rung, but no-one home.
    I will read all your blog when time permits and when I have a large box of tissues on the desk.
    I would like to say that you and C are a truly wonderful couple – quite unique.
    I am so delighted to know that you have at last a “normal” child and she is so beautiful. C certainly contributed to yet another lovely strawberry blonde!
    I feel priviliged to have been a part of your lives even for a short time.
    I will be in touch but in the meantime I wish you and your family and happy and love-filled Christmas.
    Love
    Norma

  9. Hi Norma
    So neat to hear from you again! We feel very priviliged to have had someone like you looking after our kids every week way back then. I think at the time you were my only real break, so it was a very valued time.
    Would be great to catch up again some time. Hope you and your family have a fantastic Christmas and New Year.


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